Can a simple survey predict survivor health? new study aims to find out
NCT ID NCT03229837
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study looked at whether health questionnaires filled out by childhood cancer survivors and their parents match what doctors find during check-ups. About 300 survivors aged 8 to 18 took part, completing surveys over three years. The goal is to make these questionnaires more accurate for tracking long-term health after cancer treatment.
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Study facts
What this study's own registry entry says, in plain language.
- Participants
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303 people
The number who actually took part.
- Started
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Aug 2017
- Finished
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Jun 2025
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
Participants will be recruited from a cohort of diverse childhood cancer survivors who were treatment at St. Jude and their parents/legal guardians.
- Ages
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8 to 18 years
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria for Childhood Survivors: * St. Jude childhood cancer survivors who have consented to SJLIFE; * Age at assessment: 8-18.9 years at T1 (toward 20.9 years at T3); * 2 years off therapy and \> 5 years since diagnosis; and * Agrees to complete three annual assessments during routinely scheduled ACT clinic appointments. Exclusion Criteria for Childhood Survivors: * Cancer-related or unrelated (e.g., genetic disorders) neurocognitive injuries that requires parents/proxies to complete the survey \[e.g. intelligence quotient (IQ) \<70\]; * Inability to read and speak English; or * Parent doesn't agree to participate in the parent part of the study. Inclusion Criteria for Parents/Legal Guardians: * Parent/legal guardian of St. Jude childhood cancer survivor aged 8-18.9 who is eligible to participate and has agreed to do so; * Participant is not developmentally delayed, intellectually disabled or non-communicative; and * Participant speaks and understands the English language. Exclusion Criteria for Parents/Legal Guardians: * Developmentally delayed, intellectually disabled or non-communicative; * Unable to speak or understand the English language; and * Child doesn't agree to participate in child part of the study.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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St. Jude Children's Research Hospital
Memphis, Tennessee, 38105, United States
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- The forgotten siblings: can two surveys give voice to children living beside a brother or sister with cancer?
- Radiation probe targets Hard-to-Treat tumors
- Why do children with cancer feel pain differently? study compares pain sensitivity and activity
- Can a phone app help childhood cancer survivors keep track of their health?
- Can a picture tool help kids with cancer say how they feel?
- Can a radioactive tracer light up hidden tumors on scans?