What do CF parents really need? study seeks answers
NCT ID NCT04133246
First seen Nov 20, 2025 · Last updated May 23, 2026 · Updated 23 times
Summary
This study aimed to understand the thoughts, expectations, and needs of adults with cystic fibrosis (CF) who are parents or planning to become parents. Researchers held small group discussions and one-on-one interviews with 52 participants, including patients and their spouses. The goal was to identify common themes and challenges to help design better medical, psychological, and social support for CF parents.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Cochin Hospital
Paris, Île-de-France Region, 75012, France
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Foch Hospital
Suresnes, Île-de-France Region, 92150, France
Conditions
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