What do CF patients really think about parenthood?

NCT ID NCT04133246

First seen Nov 20, 2025 · Last updated May 15, 2026 · Updated 22 times

Summary

This study aimed to understand the thoughts, expectations, and needs of adults with cystic fibrosis (CF) who are parents or planning to become parents. Researchers held group discussions and individual interviews with 52 participants, including patients and their spouses. The goal was to identify key themes to help design better medical, psychological, and social support for CF patients navigating parenthood.

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Contacts and locations

Locations

  • Cochin Hospital

    Paris, Île-de-France Region, 75012, France

  • Foch Hospital

    Suresnes, Île-de-France Region, 92150, France

Conditions

Explore the condition pages connected to this study.