New questionnaire aims to give cardiac sarcoidosis patients a voice
NCT ID NCT05145023
First seen Dec 08, 2025 · Last updated May 23, 2026 · Updated 19 times
Summary
This study created and tested a new questionnaire called CARD-SARC to measure how cardiac sarcoidosis affects patients' daily lives and well-being. Researchers worked with 130 adults diagnosed with cardiac sarcoidosis at two NHS specialist centers in the UK. The goal was to develop a reliable tool that doctors can use to track changes in quality of life over time, helping improve patient care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Royal Papworth Hospital NHS Foundation Trust
Cambridge, CB20AY, United Kingdom
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St Bartholomew's Hospital - Barts Health NHS Trust
London, EC1A 7DN, United Kingdom
Conditions
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