Doctors unite to map mysterious childhood disease
NCT ID NCT07468461
Summary
This study aims to gather detailed information about CACP syndrome, a very rare genetic disorder that causes bent fingers, joint problems, hip issues, and sometimes heart inflammation in children. Researchers across Europe will collect health data from about 15 children already diagnosed with CACP to better understand how the disease progresses, what symptoms are most common, and how current treatments help manage it. The goal is to create a clearer picture of this poorly understood condition to help doctors recognize it earlier and care for patients better.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for PERICARDITIS are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
ASST Fatebenefratelli
NOT_YET_RECRUITINGMilan, Italy
Contact
-
Ankara Pediatrik Romatoloji Bilim Dalý Hacettepe Üniversitesi
NOT_YET_RECRUITINGAnkara, 06105, Turkey (Türkiye)
Contact
-
Azienda Ospedaliera di Padova
NOT_YET_RECRUITINGPadova, Italy
Contact
-
Centro di Reumatologia Pediatrica
NOT_YET_RECRUITINGUdine, Italy
Contact
-
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico
RECRUITINGMilan, Italy
Contact
-
Hiospedal Sant Joan de Déu
NOT_YET_RECRUITINGBarcelona, 208950, Spain
Contact
-
IRCCS Istituto Giannina Gaslini,
RECRUITINGGenova, Italy
Contact
-
Ospedale Pediatrico Giovanni XXIII
NOT_YET_RECRUITINGBari, Italy
Contact
-
Rheumatology Unit, Meyer Children's Hospital
RECRUITINGFlorence, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
Santa Maria Goretti Hospital
NOT_YET_RECRUITINGRoma, Italy
Contact
Conditions
Explore the condition pages connected to this study.