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Scientists track genetic disease to find future clues

NCT ID NCT01925196

Summary

This study aimed to understand how symptoms develop and change over time in people who carry a specific genetic mutation that causes ALS (Lou Gehrig's disease) and frontotemporal dementia. Researchers followed 50 adults with this mutation for up to three years, conducting brain scans, memory tests, and collecting blood and spinal fluid samples. The goal was to track the natural course of the diseases and identify biological markers that could help measure disease progression in the future.

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Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.