Scientists hunt for genetic clues in rare childhood liver disease
NCT ID NCT00345553
First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 32 times
Summary
This study aims to learn more about biliary atresia, a rare liver disease in children. Researchers will collect medical information, genetic material, and body fluid samples from 1,265 participants aged 6 months to 20 years who still have their native liver. The goal is to find genes linked to the disease and understand how it progresses over time in older children who haven't had a transplant.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Ann & Robert H. Lurie Children's Hospital of Chicago
RECRUITINGChicago, Illinois, 60614, United States
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Children's Healthcare of Atlanta - Emory University
RECRUITINGAtlanta, Georgia, 30322, United States
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Children's Hospital Colorado
RECRUITINGAurora, Colorado, 80045, United States
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Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
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Children's Hospital of Los Angeles
RECRUITINGLos Angeles, California, 90027, United States
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Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
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Hospital for Sick Children
COMPLETEDToronto, Ontario, M5G 1X8, Canada
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Johns Hopkins School of Medicine
COMPLETEDBaltimore, Maryland, 21287, United States
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Mount Sinai Medical Center
COMPLETEDNew York, New York, 10029, United States
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Riley Children's Hospital
COMPLETEDIndianapolis, Indiana, 46202, United States
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Seattle Children's Hospital
RECRUITINGSeattle, Washington, 98105, United States
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Texas Children's Hospital (Baylor College of Medicine)
RECRUITINGHouston, Texas, 77030, United States
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UPMC Children's Hospital of Pittsburgh
RECRUITINGPittsburgh, Pennsylvania, 15224, United States
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University of California at San Francisco
COMPLETEDSan Francisco, California, 94143, United States
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University of Utah
RECRUITINGSalt Lake City, Utah, 84113, United States
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Washington University School of Medicine
COMPLETEDSt Louis, Missouri, 63110, United States
Conditions
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