Arbor Research Collaborative For Health

This study collects one-time blood or saliva samples from children who previously participated in liver disease research. The DNA will be stored and used to understand what causes these rare liver conditions and how they progress. Researchers hope this genetic information will le…

This study aims to learn more about biliary atresia, a rare and serious liver disease in children. Researchers will collect health information, genetic material, and body fluid samples from over 1,200 children and young adults who have the disease but have not yet had a liver tra…

This study aims to better understand primary sclerosing cholangitis (PSC), a rare disease that scars the liver's bile ducts. Researchers will observe 1,000 children and young adults (ages 2-25) who already have PSC, collecting health information, images, and samples over time. Th…

This study aims to learn how to detect pancreatic cancer earlier by observing and collecting samples from up to 20,000 people at high risk, such as those with a strong family history or certain genetic changes. Participants will be followed over time, but this is an observational…

This study creates a national database to track infants with serious liver conditions like biliary atresia. Researchers will follow 1,000 children up to age 10, collecting health information and blood samples during regular medical care. The goal is to better understand how these…