Massive ALS study aims to unlock secrets of the disease
NCT ID NCT06578195
First seen Nov 01, 2025 · Last updated Jun 23, 2026 · Updated 35 times
Summary
This study is gathering medical information, blood samples, and speech recordings from 2,000 people with ALS and healthy volunteers over two years. The goal is to create a shared resource that scientists can use to better understand ALS and develop new treatments. Participants can take part in person or remotely.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Barrow Neurological Institute
RECRUITINGPhoenix, Arizona, 85013, United States
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CHALS-CCT, University of Puerto Rico, Medical Sciences Campus
RECRUITINGSan Juan, Puerto Rico, 00935, Puerto Rico
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Columbia University
RECRUITINGNew York, New York, 10032, United States
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Dartmouth Hitchcock Medical Center
RECRUITINGLebanon, New Hampshire, 03756, United States
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Duke University
RECRUITINGDurham, North Carolina, 27705, United States
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Georgetown University
RECRUITINGWashington D.C., District of Columbia, 20007, United States
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Henry Ford Health
RECRUITINGDetroit, Michigan, 48202, United States
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Hospital For Special Care
RECRUITINGNew Britain, Connecticut, 06053, United States
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Indiana University
RECRUITINGIndianapolis, Indiana, 46202, United States
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John Hopkins University
RECRUITINGBaltimore, Maryland, 21205, United States
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Massachusetts General Brigham
RECRUITINGBoston, Massachusetts, 02145, United States
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Mayo Clinic
RECRUITINGJacksonville, Florida, 32224, United States
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Nih/Ninds
RECRUITINGBethseda, Maryland, 20892, United States
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Northwestern University
RECRUITINGChicago, Illinois, 60611, United States
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Ohio State University
RECRUITINGColombus, Ohio, 43221, United States
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Penn State Health
RECRUITINGHershey, Pennsylvania, 17033, United States
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Providence ALS Center
RECRUITINGPortland, Oregon, 97213, United States
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Saint Alphonsus Regional Medical Center
RECRUITINGBoise, Idaho, 83704, United States
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Temple University
RECRUITINGPhiladelphia, Pennsylvania, 19140, United States
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Texas Neurology
RECRUITINGDallas, Texas, 75206, United States
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University of Alabama Birmingham
RECRUITINGBirmingham, Alabama, 35294, United States
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University of California San Diego
RECRUITINGLa Jolla, California, 98037, United States
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University of California, Irvine
RECRUITINGIrvine, California, 92868, United States
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University of California, San Francisco
RECRUITINGSan Francisco, California, 94143, United States
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University of Colorado Anschutz Medical Campus
RECRUITINGAurora, Colorado, 80045, United States
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University of Michigan
RECRUITINGAnn Arbor, Michigan, 48109, United States
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University of Minnesota
RECRUITINGMinneapolis, Minnesota, 55455, United States
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University of Nebraska Medical Center
RECRUITINGOmaha, Nebraska, 68198, United States
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University of Utah
RECRUITINGSalt Lake City, Utah, 84132, United States
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University of Washington
RECRUITINGSeattle, Washington, 98195, United States
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 23298, United States
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Washington University
RECRUITINGSt Louis, Missouri, 63110, United States
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What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study will create a rich database of samples and measurements that could help researchers discover new treatments or biomarkers for ALS.
What could go wrong
This is an observational study, not a treatment trial. It will not directly help participants, and the data may not lead to immediate breakthroughs.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.