NIH launches deep dive into rare immune disease ALPS
NCT ID NCT00001350
First seen Nov 01, 2025 · Last updated May 19, 2026 · Updated 25 times
Summary
This study follows up to 1,200 people with Autoimmune Lymphoproliferative Syndrome (ALPS) and their relatives to learn how the disease works, how it is inherited, and how it changes over time. Participants will have yearly check-ups and tests at the NIH. The goal is to better understand the immune system problems that cause ALPS and to improve future treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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