Scientists seek answers for rare immune disease ALPS in landmark study

NCT ID NCT00001350

Recruiting now Knowledge-focused Sponsor: National Institute of Allergy and Infectious Diseases (NIAID) Source: ClinicalTrials.gov ↗

First seen Nov 01, 2025 · Last updated May 11, 2026 · Updated 23 times

Summary

This study follows people with Autoimmune Lymphoproliferative Syndrome (ALPS) and their relatives over many years. Researchers aim to learn how the immune system goes wrong, what genes are involved, and how the disease changes over time. Participants visit the NIH once a year for check-ups and tests. The goal is not to test a new treatment, but to gather knowledge that could lead to better care in the future.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

National Institutes of Health Clinical Center
RECRUITING

Bethesda, Maryland, 20892, United States

Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

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BENIGN LYMPHOPROLIFERATIVE DISORDER