Major study launches to map rare kidney Disease's natural course
NCT ID NCT05927467
First seen Nov 01, 2025 · Last updated May 20, 2026 · Updated 36 times
Summary
This study follows 700 people with Alport syndrome, a rare inherited disease that can cause kidney failure, hearing loss, and eye problems. Researchers will collect health data over time to see how the disease progresses and to find early signs of kidney decline. The goal is to prepare for future treatment trials by understanding the disease's natural history.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for ALPORT SYNDROME are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
-
Contact
Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
RaDiCo Eurbio-Alport
RECRUITINGParis, Île-de-France Region, 75012, France
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.