Massive AL amyloidosis registry launches to uncover Real-World patterns
NCT ID NCT04839003
First seen Apr 18, 2026 · Last updated May 19, 2026 · Updated 3 times
Summary
This study is building a large registry of 5000 people with AL amyloidosis, a rare disease where abnormal proteins damage organs. Researchers will collect information from medical records and follow-ups to see how the disease progresses and how current treatments affect it. No new drugs or procedures are being tested; the goal is simply to learn more about the condition in everyday practice.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Fondazione IRCCS Policlinico San Matteo
RECRUITINGPavia, 27100, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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