X-LINKED HYPOPHOSPHATEMIA
Clinical trials for X-LINKED HYPOPHOSPHATEMIA explained in plain language.
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10-Year XLH study aims to unlock secrets of rare bone disease
Knowledge-focused OngoingThis study follows 226 people with X-linked hypophosphatemia (XLH), a rare genetic bone disease, for up to 10 years. Researchers will measure height, walking ability, and other health factors to better understand how the disease progresses and affects daily life. The goal is to g…
Matched conditions: X-LINKED HYPOPHOSPHATEMIA
Sponsor: Kyowa Kirin Co., Ltd. • Aim: Knowledge-focused
Last updated May 26, 2026 12:08 UTC
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XLH patients monitored for years in major observational study
Knowledge-focused OngoingThis observational study follows 782 people with X-linked hypophosphatemia (XLH), a rare genetic bone disease, to understand how the condition changes over time. It also checks the long-term safety and effectiveness of the drug burosumab. Participants receive no new treatment—jus…
Matched conditions: X-LINKED HYPOPHOSPHATEMIA
Sponsor: Ultragenyx Pharmaceutical Inc • Aim: Knowledge-focused
Last updated May 14, 2026 12:03 UTC