10-Year XLH study aims to unlock secrets of rare bone disease
NCT ID NCT03745521
First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 31 times
Summary
This study follows 226 people with X-linked hypophosphatemia (XLH), a rare genetic bone disease, for up to 10 years. Researchers will measure height, walking ability, and other health factors to better understand how the disease progresses and affects daily life. The goal is to gather information, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Locations
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Osaka University Hospital
Osaka, Japan
Conditions
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