10-Year XLH study aims to uncover hidden disease toll
NCT ID NCT03745521
First seen Nov 01, 2025 · Last updated May 12, 2026 · Updated 28 times
Summary
This study follows 226 people with X-linked hypophosphatemia (XLH) for up to 10 years. Researchers will collect information on height, walking ability, fractures, and daily life challenges to better understand how the disease changes over time and affects patients physically and emotionally. No new treatments are tested; the goal is to gather real-world data to improve future care.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for X-LINKED HYPOPHOSPHATEMIA are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
Osaka University Hospital
Osaka, Japan
Conditions
Explore the condition pages connected to this study.