VHL - VON HIPPEL-LINDAU SYNDROME
Clinical trials for VHL - VON HIPPEL-LINDAU SYNDROME explained in plain language.
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New pill shrinks kidney tumors in rare genetic disease
Disease control OngoingThis study tests a daily pill called belzutifan for people with VHL disease who have kidney cancer. The goal is to see if the drug can shrink or eliminate tumors without needing surgery. About 50 adults with VHL and at least one measurable kidney tumor are taking part.
Matched conditions: VHL - VON HIPPEL-LINDAU SYNDROME
Phase: PHASE2 • Sponsor: Peloton Therapeutics, Inc., a subsidiary of Merck & Co., Inc. (Rahway, New Jersey USA) • Aim: Disease control
Last updated May 26, 2026 07:27 UTC
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VHL patients share their struggles in new Quality-of-Life survey
Knowledge-focused OngoingThis study asks 200 adults with von Hippel-Lindau syndrome (VHL) to fill out an online survey about their emotional well-being, quality of life, and difficulties getting care. No treatments or tests are given—the goal is simply to learn from patients' experiences. The information…
Matched conditions: VHL - VON HIPPEL-LINDAU SYNDROME
Sponsor: IRCCS Ospedale San Raffaele • Aim: Knowledge-focused
Last updated May 22, 2026 14:05 UTC