VHL - von Hippel-Lindau syndrome

Clinical trials for VHL - von Hippel-Lindau syndrome explained in plain language.

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New registry to monitor Belzutifan's Real-World impact on rare VHL tumors

Disease control Not yet recruiting

This study will follow 100 adults with von Hippel-Lindau (VHL) disease who choose to take belzutifan. Researchers will track how well the drug shrinks tumors, its side effects, and its impact on quality of life and healthcare costs. The goal is to better understand the drug's rea…

Matched conditions: VHL - VON HIPPEL-LINDAU SYNDROME

Sponsor: Chinese University of Hong Kong • Aim: Disease control

Last updated Jun 27, 2026 12:29 UTC

VHL - von Hippel-Lindau syndrome

Get alerted when new VHL - von Hippel-Lindau syndrome trials appear

New registry to monitor Belzutifan's Real-World impact on rare VHL tumors