TUBEROUS SCLEROSIS COMPLEX
Clinical trials for TUBEROUS SCLEROSIS COMPLEX explained in plain language.
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Safety check: monitoring liver health in patients taking seizure medication
Disease control OngoingThis study aims to monitor for potential long-term liver effects in people taking Epidiolex (cannabidiol) for severe seizure disorders. Researchers will follow 154 participants who are either already taking Epidiolex or starting it for FDA-approved conditions. The main goal is to…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE4 • Sponsor: Jazz Pharmaceuticals • Aim: Disease control
Last updated Apr 03, 2026 14:43 UTC
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Decade-Long safety watch for seizure drug in rare genetic disorder
Disease control OngoingThis study follows patients with tuberous sclerosis complex (TSC) who have hard-to-control seizures and are already taking everolimus in a previous trial. The goal is to monitor the long-term safety of this medication over approximately 10 years. Participants continue taking ever…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE3 • Sponsor: Novartis Pharmaceuticals • Aim: Disease control
Last updated Apr 02, 2026 14:58 UTC
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New scan aims to predict drug effectiveness for rare lung disease
Knowledge-focused OngoingThis study is testing whether a special type of PET scan can act as an early sign that the drug rapamycin is working for patients with Lymphangioleiomyomatosis (LAM), a rare lung disease. Seven adult patients with LAM and a specific kidney tumor will receive one or two of these s…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE1, PHASE2 • Sponsor: Brigham and Women's Hospital • Aim: Knowledge-focused
Last updated Apr 03, 2026 14:43 UTC