TUBEROUS SCLEROSIS COMPLEX
Clinical trials for TUBEROUS SCLEROSIS COMPLEX explained in plain language.
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Phone app aims to slow kidney disease in young adults
Disease control Recruiting nowThis study tests whether a smartphone app can help doctors and young adults with chronic kidney disease (CKD) follow the latest treatment guidelines. The app provides reminders, education, and care recommendations to delay kidney disease progression. About 80 participants aged 16…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: NA • Sponsor: St. James's Hospital, Ireland • Aim: Disease control
Last updated May 22, 2026 14:02 UTC
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HOPE FOR TSC BABIES: DRUG MAY STOP SEIZURES BEFORE THEY START
Prevention Recruiting nowThis study tests whether giving the drug sirolimus early can prevent or delay seizures in infants with tuberous sclerosis complex (TSC). About 64 babies under 7 months old will receive either sirolimus or a placebo. The goal is to see if early treatment can protect brain developm…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Phase: PHASE2 • Sponsor: Darcy Krueger • Aim: Prevention
Last updated May 26, 2026 03:51 UTC
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CBD study tracks seizure control in Tough-to-Treat epilepsies
Symptom relief Recruiting nowThis study follows about 100 people with Lennox-Gastaut, Dravet, or tuberous sclerosis complex who are prescribed Epidyolex (a CBD liquid) alongside their usual seizure medicines. Researchers will track how long people stay on the treatment and how many seizure-free days they hav…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Sponsor: Jazz Pharmaceuticals • Aim: Symptom relief
Last updated May 26, 2026 03:38 UTC
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New registry tracks pregnancy in women with rare genetic conditions
Knowledge-focused Recruiting nowThis study collects information from pregnant women with Tuberous Sclerosis Complex (TSC) or Lymphangioleiomyomatosis (LAM) and their babies. It aims to understand how these conditions affect pregnancy and how medications like mTOR inhibitors are used. The goal is to improve care…
Matched conditions: TUBEROUS SCLEROSIS COMPLEX
Sponsor: David M. Ritter • Aim: Knowledge-focused
Last updated May 26, 2026 03:49 UTC