SPINAL MUSCULAR ATROPHY (SMA)
Clinical trials for SPINAL MUSCULAR ATROPHY (SMA) explained in plain language.
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Can a support group boost caregiver confidence for kids with rare muscle diseases?
Symptom relief Not yet recruitingThis study tests whether a special support group can improve the confidence (self-efficacy) of primary caregivers of children with spinal muscular atrophy or Duchenne muscular dystrophy. Thirty caregivers will take part and complete a questionnaire before and after the 8-week pro…
Matched conditions: SPINAL MUSCULAR ATROPHY (SMA)
Phase: NA • Sponsor: Aga Khan University • Aim: Symptom relief
Last updated May 26, 2026 07:01 UTC
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Video game rehab could help kids with muscle weakness exercise at home
Symptom relief Not yet recruitingThis study tests a new virtual rehab platform for young people (ages 12-18) with spinal muscular atrophy, a condition that causes muscle weakness. The platform uses video games, muscle sensors, and soft robotic devices to make home exercise more fun and accessible. The goal is to…
Matched conditions: SPINAL MUSCULAR ATROPHY (SMA)
Phase: NA • Sponsor: University of Oxford • Aim: Symptom relief
Last updated May 26, 2026 06:46 UTC
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Horseback therapy hopes to ease symptoms of rare muscle disease in kids
Symptom relief Not yet recruitingThis study tests whether a special type of physiotherapy using horses can improve movement, posture, breathing, and quality of life in children with spinal muscular atrophy (SMA). Twenty children aged 2 to 9 will receive both horse-assisted therapy and standard physiotherapy in r…
Matched conditions: SPINAL MUSCULAR ATROPHY (SMA)
Phase: NA • Sponsor: Charles University, Czech Republic • Aim: Symptom relief
Last updated May 22, 2026 13:50 UTC
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New study probes hidden emotional toll of SMA newborn screening on parents
Knowledge-focused Not yet recruitingThis study looks at how parents react emotionally after their baby is screened for spinal muscular atrophy (SMA) through France's newborn screening program. Researchers will interview 36 parents and ask them to complete questionnaires about anxiety, depression, and stress. The go…
Matched conditions: SPINAL MUSCULAR ATROPHY (SMA)
Sponsor: University Hospital, Strasbourg, France • Aim: Knowledge-focused
Last updated May 26, 2026 07:03 UTC