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New study probes hidden emotional toll of SMA newborn screening on parents

NCT ID NCT07208903

First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 23 times

Summary

This study looks at how parents react emotionally after their baby is screened for spinal muscular atrophy (SMA) through France's newborn screening program. Researchers will interview 36 parents and ask them to complete questionnaires about anxiety, depression, and stress. The goal is to understand what support parents need and to help improve how screening results are shared.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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