RARE GENETIC DISORDERS
Clinical trials for RARE GENETIC DISORDERS explained in plain language.
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IPad app may help kids with rare genetic disorders find their voice
Symptom relief Recruiting nowThis study tests whether a speech-generating iPad app can improve communication for children aged 3 to 12 with rare genetic conditions who have limited speech. Each child will try the device and also receive usual care, in a random order, to compare results. The goal is to see if…
Matched conditions: RARE GENETIC DISORDERS
Phase: NA • Sponsor: Murdoch Childrens Research Institute • Aim: Symptom relief
Last updated Jun 24, 2026 02:46 UTC
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Study explores the hidden toll of rare genetic diseases on families
Knowledge-focused Recruiting nowThis study looks at how the daily abilities of young children (0-4 years) with rare genetic disorders impact their families' mental health and quality of life. Researchers will assess the child's functional independence and measure parents' depression and well-being through quest…
Matched conditions: RARE GENETIC DISORDERS
Sponsor: Bahçeşehir University • Aim: Knowledge-focused
Last updated Jun 18, 2026 11:52 UTC