IPad app may help kids with rare genetic disorders find their voice
NCT ID NCT07039084
First seen Nov 01, 2025 · Last updated Jun 23, 2026 · Updated 37 times
Summary
This study tests whether a speech-generating iPad app can improve communication for children aged 3 to 12 with rare genetic conditions who have limited speech. Each child will try the device and also receive usual care, in a random order, to compare results. The goal is to see if the device helps them express themselves more often.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Murdoch Children's Research Institute
RECRUITINGMelbourne, Victoria, Australia
Contact
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What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
iPad with speech-generating communication app
What this could lead to
If it works, this could provide a practical tool to help children with rare genetic conditions communicate more effectively.
What could go wrong
This is a small early-stage trial with only 38 participants, so results may not apply to everyone. The device may not improve communication for all children.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.