RARE GENETIC DISORDERS

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Trials to join now! 1

Researchers probe hidden toll on families of children with rare diseases

Knowledge-focused Recruiting now

This study aims to understand how caring for a young child with a rare genetic disease affects a family's mental health and daily life. Researchers will survey 45 families in Turkey, measuring the child's ability to perform daily tasks and linking it to parents' stress, sleep, an…

Matched conditions: RARE GENETIC DISORDERS

Sponsor: Bahçeşehir University • Aim: Knowledge-focused

Last updated Mar 30, 2026 14:32 UTC

RARE GENETIC DISORDERS

Get alerted when new RARE GENETIC DISORDERS trials appear

Researchers probe hidden toll on families of children with rare diseases