RARE GENETIC DISORDERS
Clinical trials for RARE GENETIC DISORDERS explained in plain language.
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IPad app gives voice to kids with rare genetic disorders
Symptom relief Recruiting nowThis study tests whether a speech-generating app on an iPad can improve communication for children aged 3 to 12 with rare genetic conditions who have limited speech. Each child will try the device and also receive usual care, with the order decided by chance. The goal is to see i…
Matched conditions: RARE GENETIC DISORDERS
Phase: NA • Sponsor: Murdoch Childrens Research Institute • Aim: Symptom relief
Last updated Jun 15, 2026 19:02 UTC
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Rare disease study: Child's independence tied to family mental health
Knowledge-focused Recruiting nowThis study looks at how the daily independence of young children with rare genetic disorders affects their families' mental health and quality of life. Researchers will assess 45 children aged 0-4 and their caregivers using questionnaires. The goal is to help doctors and therapis…
Matched conditions: RARE GENETIC DISORDERS
Sponsor: Bahçeşehir University • Aim: Knowledge-focused
Last updated Jun 17, 2026 05:26 UTC