RARE DISEASES
Clinical trials for RARE DISEASES explained in plain language.
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Can a social skills class help teens with rare disorders feel less lonely?
Symptom relief CompletedThis study tested a French version of a social skills training program called PEERS for adolescents and young adults (aged 12-30) with rare neurodevelopmental disorders. The goal was to see if improving social skills could help reduce feelings of loneliness, social anxiety, and d…
Matched conditions: RARE DISEASES
Sponsor: Imagine Institute • Aim: Symptom relief
Last updated Mar 30, 2026 14:28 UTC
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Families speak out: what we want to know from genetic testing
Knowledge-focused CompletedThis study explored how families of children with rare developmental disorders feel about receiving different types of genetic test results. Researchers surveyed and interviewed 530 parents in France to understand their preferences about what information they want from advanced g…
Matched conditions: RARE DISEASES
Phase: NA • Sponsor: Centre Hospitalier Universitaire Dijon • Aim: Knowledge-focused
Last updated Apr 02, 2026 14:58 UTC
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Patients speak out: the hidden oral health struggles of rare diseases
Knowledge-focused CompletedThis study aimed to understand how rare diseases affect people's oral health and daily life. Researchers interviewed 28 patients, both children and adults, with various rare conditions at a Paris hospital. The goal was to listen to their personal experiences and challenges, rathe…
Matched conditions: RARE DISEASES
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:34 UTC