RARE DISEASES
Clinical trials for RARE DISEASES explained in plain language.
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Robot buddy boosts bonding and calms nerves in rare disease families
Symptom relief CompletedThis study tested whether a social robot named PARO could help children with rare diseases and their parents feel less anxious and stressed while improving their relationship. Fourteen families interacted with the robot in short sessions over several weeks. The goal was to see if…
Matched conditions: RARE DISEASES
Phase: NA • Sponsor: National Yang Ming Chiao Tung University • Aim: Symptom relief
Last updated May 22, 2026 14:04 UTC
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Rare disease patients share oral health struggles in new study
Knowledge-focused CompletedThis study looked at how rare diseases impact oral health and daily life. Researchers interviewed 28 patients aged 6 and older at Necker Hospital in Paris. The goal was to understand their experiences and identify barriers to dental care. The study does not test a treatment but g…
Matched conditions: RARE DISEASES
Sponsor: Assistance Publique - Hôpitaux de Paris • Aim: Knowledge-focused
Last updated May 26, 2026 06:18 UTC
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What do families think about genetic testing? new study seeks answers
Knowledge-focused CompletedThis study looked at how families of children with rare developmental disorders feel about advanced genetic testing. Researchers surveyed and interviewed over 500 parents to understand their preferences about receiving unexpected genetic results. The goal is to help doctors bette…
Matched conditions: RARE DISEASES
Phase: NA • Sponsor: Centre Hospitalier Universitaire Dijon • Aim: Knowledge-focused
Last updated May 22, 2026 14:02 UTC
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Can a social skills class help teens with rare disorders make friends?
Knowledge-focused CompletedThis study looked at whether a French version of the PEERS social skills program helps teenagers and young adults with rare neurodevelopmental disorders improve their social skills. 64 participants took part in the program with a family member or friend. Researchers measured chan…
Matched conditions: RARE DISEASES
Sponsor: Imagine Institute • Aim: Knowledge-focused
Last updated May 20, 2026 11:55 UTC