What do families think about genetic testing? new study seeks answers
NCT ID NCT02814747
First seen Feb 06, 2026 · Last updated May 20, 2026 · Updated 15 times
Summary
This study looked at how families of children with rare developmental disorders feel about advanced genetic testing. Researchers surveyed and interviewed over 500 parents to understand their preferences about receiving unexpected genetic results. The goal is to help doctors better inform and support families when using these tests for diagnosis.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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CHU Dijon Bourgogne
Dijon, 21079, France
Conditions
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