ERYTHROPOIETIC PROTOPORPHYRIA
Clinical trials for ERYTHROPOIETIC PROTOPORPHYRIA explained in plain language.
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New drug shows promise for sun allergy in rare blood disorder
Disease control CompletedThis study tested an experimental drug called bitopertin in 75 adults with erythropoietic protoporphyria (EPP), a rare condition that causes severe pain and skin reactions from sunlight. The goal was to see if the drug could lower levels of a harmful substance (PPIX) in the blood…
Matched conditions: ERYTHROPOIETIC PROTOPORPHYRIA
Phase: PHASE2 • Sponsor: Disc Medicine, Inc • Aim: Disease control
Last updated May 26, 2026 10:17 UTC
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Common heartburn drug may ease rare sun allergy
Symptom relief CompletedThis study tested whether cimetidine, a common heartburn medication, can help people with rare genetic conditions that cause severe, painful reactions to sunlight. 26 participants took the drug to see if it lowered harmful blood chemicals and improved their ability to be outdoors…
Matched conditions: ERYTHROPOIETIC PROTOPORPHYRIA
Phase: PHASE2 • Sponsor: Amy K. Dickey, M.D. • Aim: Symptom relief
Last updated May 20, 2026 11:55 UTC
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EPP drug levels measured in teens and adults
Knowledge-focused CompletedThis study looked at how the drug afamelanotide is processed in the body of 28 people with erythropoietic protoporphyria (EPP), a rare condition causing severe sun sensitivity. Participants were aged 12 to 70 and had a healthy weight. The main goal was to measure the drug's conce…
Matched conditions: ERYTHROPOIETIC PROTOPORPHYRIA
Phase: PHASE1, PHASE2 • Sponsor: Clinuvel Europe Limited • Aim: Knowledge-focused
Last updated May 13, 2026 16:02 UTC