New drug shows promise for sun allergy in rare blood disorder
NCT ID NCT05308472
First seen Jan 11, 2026 · Last updated May 24, 2026 · Updated 26 times
Summary
This study tested an experimental drug called bitopertin in 75 adults with erythropoietic protoporphyria (EPP), a rare condition that causes severe pain and skin reactions from sunlight. The goal was to see if the drug could lower levels of a harmful substance (PPIX) in the blood and allow more time in the sun without pain. Participants received either bitopertin or a placebo, and some could continue in an open-label extension after the main study.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Atrium Health Wake Forest Baptist
Winston-Salem, North Carolina, 27157, United States
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Einstein Medical Center
Philadelphia, Pennsylvania, 19141, United States
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Fred Hutchinson Cancer Center
Seattle, Washington, 98109, United States
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Mount Sinai Hospital
New York, New York, 10029, United States
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University of Alabama Hospital
Birmingham, Alabama, 35233, United States
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University of California San Francisco
San Francisco, California, 94117, United States
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University of Miami Miller School of Medicine
Miami, Florida, 33136, United States
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University of Texas
Galveston, Texas, 77550, United States
Conditions
Explore the condition pages connected to this study.