New drug offers hope for patients who Can't tolerate sunlight
NCT ID NCT05308472
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study tested a drug called bitopertin in 75 adults with erythropoietic protoporphyria (EPP), a rare condition that causes severe pain from sunlight exposure. The goal was to see if the drug is safe and can lower levels of a harmful substance in the blood. Participants received either bitopertin or a placebo, and some later joined an open-label extension.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Atrium Health Wake Forest Baptist
Winston-Salem, North Carolina, 27157, United States
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Einstein Medical Center
Philadelphia, Pennsylvania, 19141, United States
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Fred Hutchinson Cancer Center
Seattle, Washington, 98109, United States
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Mount Sinai Hospital
New York, New York, 10029, United States
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University of Alabama Hospital
Birmingham, Alabama, 35233, United States
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University of California San Francisco
San Francisco, California, 94117, United States
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University of Miami Miller School of Medicine
Miami, Florida, 33136, United States
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University of Texas
Galveston, Texas, 77550, United States