Hemophilia

This study tests whether a mechanical 3D ultrasound device can detect joint damage in people with hemophilia as accurately as a full ultrasound or MRI. Eleven participants will have their ankles scanned with the new device. If it works well, it could offer a faster, less expensiv…

This study tests whether a structured educational program can help adults with hemophilia who have chronic joint pain. The program teaches about pain, emotions, and coping strategies. 70 participants will be randomly assigned to either the education program or usual care, and the…

This study looks at hemophilia A patients who have used Coageight, a recombinant factor VIII treatment, to see how many develop inhibitors, which are antibodies that block the treatment's effect. Researchers will test blood samples from about 262 male patients aged 2 and older wh…

This study compares how well adults with hemophilia (ages 18–35) perform a 30-second sit-to-stand test versus healthy peers of the same age. The goal is to see if this simple test can detect differences in leg strength and endurance linked to joint damage from bleeding. Participa…

This study tests a smart sharps disposal container that helps hemophilia patients safely throw away used needles at home. About 23 adults with moderate or severe hemophilia will use the device for several weeks. Researchers want to see if patients find it easy to use and if they …

This study looks at whether the two-minute step test is a reliable way to measure aerobic endurance in people with hemophilia. Researchers will test 35 people aged 6–18 with hemophilia A or B, comparing the step test with other measures like walking tests and balance assessments.…

This study will follow about 70 people with hemophilia A who are already taking emicizumab to prevent bleeding. Researchers will use ultrasound to check for early joint damage in elbows, knees, and ankles that are currently healthy. The goal is to see how often joint damage appea…

This study follows 75 young adults with severe hemophilia who were part of an earlier study as teens. Researchers want to see if their healthcare habits change as they become adults and what factors help them stick to treatment. The goal is to understand how to support a smooth t…

This study will enroll 70 Egyptian children with hemophilia to see if an oral health education program improves their dental health and quality of life. The program teaches proper oral care based on guidelines from dental and hemophilia organizations. Researchers will measure cav…

This study will compare MRI scans with standard X-rays to see which method better detects knee joint damage in adults with hemophilia who have had repeated bleeding in the knee. Researchers will use special scoring systems to measure early and advanced joint changes. The goal is …