Den här översättningen är inte klar ännu. Den här sidan är just nu på engelska.

Gå till den engelska sidan

Cure My Disease

Don't miss your cure!

 Log in / Sign up

Growing up with hemophilia: new study tracks health habits from teen to adult

NCT ID NCT07418827

Knowledge-focused Sponsor: Assistance Publique Hopitaux De Marseille Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting This study
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows 75 young adults with severe hemophilia who were part of an earlier study as teens. Researchers want to see if their healthcare habits change as they become adults and what factors help them stick to treatment. The goal is to understand how to support a smooth transition to adult care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 75 people

The number the study aims to enrol. It can still change while the study runs.

Expected to start

Feb 2026

An estimate. Start dates often move.

Expected to finish

Jun 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Young adults with severe haemophilia (haemophilia A or B)

Ages

20 to 29 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Young adults who participated in the TRANSHEMO project during adolescence and who are currently aged 20-29 years; * Young adults with severe haemophilia (haemophilia A or B); * Young adults registered in the FranceCoag registry; * Young adults who have received the participant information sheet for the TRANSHEMO 2 project; * Young adults who did not object to participation in the present study. Exclusion Criteria: * patients with comprehension difficulties; * patients who are unable to read and/or write; * patients who express opposition to participation in this study.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for Haemophilia are added.

Vår säkerhetsrekommendation!

Genom att skicka in godkänner du våra Användarvillkor

Conditions

The condition(s) this trial relates to.

hemophilia hemophilia A hereditary disease severe hemophilia A severe hemophilia B

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Haemophilia

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    25 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • AP-HP (Hôpital Kremlin Bicetre)

    Paris, France

  • AP-HP (Hôpital NECKER)

    Paris, France

  • Assistance publique - Hôpitaux de Marseille

    Marseille, France

  • CH Annecy - St Julien

    Annecy, France

  • CH Montmorency

    Montmorency, France

  • CH Versailles

    Versailles, France

  • CHRU de Lille

    Lille, France

  • CHU Clermont-Ferrand

    Clermont-Ferrand, France

  • CHU La Reunion

    Saint-Denis, La Réunion, France

  • CHU Limoges

    Limoges, France

  • CHU Montpellier

    Montpellier, France

  • CHU Nantes

    Nantes, France

  • CHU Reims

    Reims, France

  • CHU St Etienne

    Saint-Etienne, France

  • CHU Strasbourg

    Strasbourg, France

  • CHU Toulouse

    Toulouse, France

  • CHU de Rennes

    Rennes, France

  • CHU de Rouen

    Rouen, France

  • Centre hospitalier Métropole Savoie

    Chambéry, France

  • Chu de Bordeaux

    Bordeaux, France

  • Chu de Caen

    Caen, France

  • Chu de Dijon

    Dijon, France

  • Chu de Grenoble

    Grenoble, France

  • Chu de Nancy

    Nancy, France

  • Hospices Civils de Lyon

    Lyon, France

More trials for these conditions

Other studies related to the condition(s) this trial covers.