Disappearing bone disease

MONDO:0003157

Syndromes of bone destruction where the cause is not obvious such as neoplasia, infection, or trauma. The destruction follows various patterns: massive (Gorham disease), multicentric (hajdu-cheney syndrome), or carpal/tarsal.

Also known as: Gorham's disease, massive osteolysis

2 clinical trials for this condition and its sub-types, 0 tagged with Disappearing bone disease itself.

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Where it sits in the disease tree

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Sub-types of Disappearing bone disease

Gorham-Stout disease 2 trials
Acroosteolysis dominant type 0 trials

Including sub-types (2) Tagged with Disappearing bone disease (0)

Trials to join now! 1 Not yet recruiting 1

Scientists launch global effort to unravel mysteries of rare lymphatic diseases

Knowledge-focused Recruiting now

This study is creating a registry of up to 1,000 people with rare lymphatic system disorders. Researchers will collect information from medical records and yearly surveys to understand how these diseases progress, what treatments are used, and how they affect quality of life. The…

Sponsor: Boston Children's Hospital • Aim: Knowledge-focused

Last updated Sep 12, 2026 00:00 UTC

Disappearing bone disease

Where it sits in the disease tree

Scientists launch global effort to unravel mysteries of rare lymphatic diseases