Scientists launch global registry to crack mysteries of rare lymphatic diseases
NCT ID NCT02399527
First seen Apr 25, 2026 · Last updated May 24, 2026 · Updated 3 times
Summary
This study is creating a registry of up to 1,000 people with rare lymphatic anomalies—conditions that affect the body's lymph system. Researchers will collect information from medical records and yearly surveys to understand how these diseases progress, what treatments work, and how they affect quality of life. The goal is to improve care and outcomes for patients with these poorly understood conditions.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Phone: •••-•••-•••• Email: •••••@•••••
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Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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