Scientists launch global effort to unravel mysteries of rare lymphatic diseases
NCT ID NCT02399527
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is creating a registry of up to 1,000 people with rare lymphatic system disorders. Researchers will collect information from medical records and yearly surveys to understand how these diseases progress, what treatments are used, and how they affect quality of life. The goal is to improve care and outcomes for patients with these poorly understood conditions.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Boston Children's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
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