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Disappearing bone disease

MONDO:0003157

Syndromes of bone destruction where the cause is not obvious such as neoplasia, infection, or trauma. The destruction follows various patterns: massive (Gorham disease), multicentric (hajdu-cheney syndrome), or carpal/tarsal.

Also known as: Gorham's disease, massive osteolysis

2 clinical trials for this condition and its sub-types.

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Sub-types

Gorham-Stout disease (2) Acroosteolysis dominant type (0)

Broader categories

Disease (618) Syndromic disease (24) Human disease (14) Disease by body system or component (0)
Trials to join now! 1 Not yet recruiting 1
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  • Scientists launch global effort to unravel mysteries of rare lymphatic diseases

    Knowledge-focused Recruiting now

    This study is creating a registry of up to 1,000 people with rare lymphatic system disorders. Researchers will collect information from medical records and yearly surveys to understand how these diseases progress, what treatments are used, and how they affect quality of life. The…

    Sponsor: Boston Children's Hospital • Aim: Knowledge-focused

    Last updated Jun 27, 2026 12:23 UTC

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