Rare disease patients in egypt face hidden struggles with diet, travel, and daily life
NCT ID NCT07241832
Summary
This study aims to understand the daily challenges faced by people living with Wilson's disease and their families in Upper Egypt. Researchers will interview 66 patients to learn about their difficulties with dietary restrictions, travel to clinics, emotional burdens, and access to care. The goal is to gather information that can help improve support services and healthcare planning for this rare condition in low-resource areas.
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