Online video aims to ease tough transition for teens with rare hormone disorder

NCT ID NCT05663320

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This pilot study aimed to see if a self-paced virtual education video could help adolescents and young adults (ages 16-22) with congenital adrenal hyperplasia (CAH) become more independent in managing their health. Participants would have been split into two groups: one watching an 11-minute educational video and the other receiving standard education. The study was withdrawn before any participants were enrolled, so no data was collected.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

virtual educational video on congenital adrenal hyperplasia

What this could lead to

If successful, this could show that a simple online video helps young people with CAH feel more ready to manage their own health care as adults.

What could go wrong

This study was withdrawn before enrolling anyone, so no results are available. Even if it had run, it was a small pilot, so findings would not be conclusive.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

congenital adrenal hyperplasia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • National Institutes of Health Clinical Center

    Bethesda, Maryland, 20892, United States