Massive baby registry aims to unlock secrets of premature infant care

NCT ID NCT00063063

Recruiting now Knowledge-focused Sponsor: NICHD Neonatal Research Network Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is a large registry that collects information on very low birth weight infants (weighing 401-1000 grams or born before 29 weeks) at multiple hospitals. Researchers track the babies' health, treatments, and outcomes to find patterns and improve future care. No experimental treatment is given—it is purely observational.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this registry could help doctors understand what treatments work best for very small or premature babies, leading to better care guidelines.
What could go wrong: This is an observational study, not a treatment trial. It collects data but does not test any intervention, so it cannot directly improve outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

fetal growth restriction Premature Birth

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

INFANT, LOW BIRTH WEIGHT INFANT, NEWBORN INFANT, PREMATURE INFANT, SMALL FOR GESTATIONAL AGE

Contacts and locations

Locations

Brown University, Women & Infants Hospital of Rhode Island
ACTIVE_NOT_RECRUITING

Providence, Rhode Island, 02905, United States
Case Western Reserve University, Rainbow Babies and Children's Hospital
RECRUITING

Cleveland, Ohio, 44106, United States
Children's Mercy Hospital
COMPLETED

Kansas City, Missouri, 64108, United States
Cincinnati Children's Medical Center
RECRUITING

Cincinnati, Ohio, 45267, United States
Duke University
RECRUITING

Durham, North Carolina, 27710, United States
Emory University
RECRUITING

Atlanta, Georgia, 30303, United States
George Washington University
COMPLETED

Washington D.C., District of Columbia, 20052, United States
Harvard University
COMPLETED

Cambridge, Massachusetts, 02138, United States
Indiana University
COMPLETED

Indianapolis, Indiana, 46202, United States
Northwestern Lurie Children's Hospital of Chicago
NOT_YET_RECRUITING

Chicago, Illinois, 60611, United States
RTI International
ACTIVE_NOT_RECRUITING

Durham, North Carolina, 27705, United States
Research Institute at Nationwide Children's Hospital
ACTIVE_NOT_RECRUITING

Columbus, Ohio, 43205, United States
Sharp Mary Birch Hospital for Women & Newborns
RECRUITING

San Diego, California, 92123, United States
Stanford University
RECRUITING

Palo Alto, California, 94304, United States
Tufts Medical Center
COMPLETED

Boston, Massachusetts, 02111, United States
Univeristy of Pennsylvania
RECRUITING

Philadelphia, Pennsylvania, 19104, United States
University of Alabama at Birmingham
RECRUITING

Birmingham, Alabama, 35233, United States
University of California - Los Angeles
COMPLETED

Los Angeles, California, 90025, United States
University of California at San Diego
COMPLETED

San Diego, California, 92103-8774, United States
University of Iowa
RECRUITING

Iowa City, Iowa, 52242, United States
University of Miami
COMPLETED

Miami, Florida, 33136, United States
University of Mississippi Medical Center - Children's of Mississippi
NOT_YET_RECRUITING

Jackson, Mississippi, 39216, United States
University of New Mexico
RECRUITING

Albuquerque, New Mexico, 87131, United States
University of Rochester
ACTIVE_NOT_RECRUITING

Rochester, New York, 14642, United States
University of Tennessee
COMPLETED

Memphis, Tennessee, 38163, United States
University of Texas Health Science Center at Houston
RECRUITING

Houston, Texas, 77030, United States
University of Texas Southwestern Medical Center at Dallas
RECRUITING

Dallas, Texas, 75235, United States
University of Utah
RECRUITING

Salt Lake City, Utah, 84108, United States
University of Vermont
COMPLETED

Burlington, Vermont, 05405, United States
Wayne State University
COMPLETED

Detroit, Michigan, 48201, United States
Yale University
COMPLETED

New Haven, Connecticut, 06504, United States

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