Can a patient registry unlock the secrets of a rare cancer?

NCT ID NCT05438537

First seen Aug 03, 2026 · Last updated Aug 04, 2026 · Updated 1 time

Summary

This study follows 300 men with upper tract urothelial cancer (UTUC), a rare cancer of the kidney's drainage system, to track their long-term survival, recurrence, and complication rates. By prospectively collecting data from patients before and after surgery or other interventions, researchers aim to better understand the physical and biological effects of the disease. The goal is to fill gaps in knowledge and potentially improve future management and follow-up strategies for UTUC.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
This registry could improve understanding of upper tract urothelial cancer, potentially guiding better management strategies and follow-up care.
What could go wrong
As an observational registry, it cannot prove cause and effect. Findings may be limited by single-center data and may not apply to broader populations.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Prince of Wales Hospital

    RECRUITING

    Hong Kong, Hong Kong

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