New study tracks safety of ultomiris in pregnant women

NCT ID NCT06312644

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study follows 75 pregnant women who have taken Ultomiris (ravulizumab) for conditions like PNH or aHUS. Researchers will track pregnancy outcomes and baby health up to one year after birth. The goal is to gather safety information, not to test a new treatment.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance
Ultomiris (ravulizumab)
What this could lead to
If successful, this study could provide important safety data on using Ultomiris during pregnancy, helping doctors and patients make informed decisions.
What could go wrong
This is an observational study, not a controlled trial, so it cannot prove cause and effect. Results may be limited by the small number of participants (75) and lack of a comparison group.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

Locations

  • Research Site

    RECRUITING

    Boston, Massachusetts, 02210, United States

  • Research Site

    NOT_YET_RECRUITING

    Melbourne, Victoria, 3050, Australia

  • Research Site

    RECRUITING

    Paris, 75475, France

  • Research Site

    RECRUITING

    Essen, Norte-Westfalia, D-45147, Germany

  • Research Site

    RECRUITING

    Rome, 00168, Italy

  • Research Site

    ACTIVE_NOT_RECRUITING

    Seoul, South Korea

  • Research Site

    ACTIVE_NOT_RECRUITING

    London, SE5 9NU, United Kingdom

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