New online program aims to ease caregiver stress in rare disease
NCT ID NCT06879665
First seen Jun 26, 2026 · Last updated Jun 26, 2026
Summary
This pilot study tests a short online program called 'Well-Beans for Caregivers' for adults caring for someone with tuberous sclerosis complex (TSC). The program consists of three weekly 2-hour sessions based on Acceptance and Commitment Therapy to help caregivers cope with difficult emotions and improve well-being. The study will enroll 30 caregivers to see if the program is feasible, acceptable, and shows signs of improving psychological flexibility.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- Active substance
- Well-Beans for Caregivers Program (behavioral intervention based on Acceptance and Commitment Therapy)
- What this could lead to
- If it works, this could offer a simple, online way to improve emotional well-being for caregivers of people with TSC.
- What could go wrong
- This is a very small pilot study (30 participants) testing feasibility, not effectiveness. The program may not show meaningful benefits or be acceptable to all caregivers.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
-
TSC Alliance
Silver Spring, Maryland, 20910, United States
-
Tuberous Sclerosis Australia
Beverly Hills, New South Wales, 2209, Australia
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