New registry aims to unlock secrets of rare sarcoma
NCT ID NCT05910307
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is building a large collection of medical data and biological samples from 1,000 people with synovial sarcoma, a rare cancer. Researchers will use this information for future genetic studies to better understand the disease and improve treatments. Participants provide access to medical records, leftover tumor tissue, and may give blood or saliva samples, plus complete questionnaires over up to 10 years.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could help researchers better understand synovial sarcoma and develop new treatments.
What could go wrong
This is an observational registry, not a treatment trial. It collects information for future studies, so there is no direct benefit to participants.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••