Large study aims to uncover best treatment paths for NET patients

NCT ID NCT05064150

First seen Jan 11, 2026 · Last updated Apr 28, 2026 · Updated 18 times

Summary

This study follows over 2,500 adults with neuroendocrine tumors (NETs) to understand how symptoms and treatment choices affect quality of life. Participants complete surveys about their well-being and care experiences over 18 months. The goal is to help doctors and patients make better treatment decisions by linking patient-reported outcomes with medical records.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Allina Health System

    Minneapolis, Minnesota, 55407, United States

  • Mayo Clinic Rochester

    Rochester, Minnesota, 55905, United States

  • Medical College of Wisconsin, Inc

    Milwaukee, Wisconsin, 53226, United States

  • Regents of the University of Michigan

    Ann Arbor, Michigan, 48109-1340, United States

  • The Medical University of South Carolina

    Charleston, South Carolina, 29407-4636, United States

  • The Ohio State University

    Columbus, Ohio, 43210, United States

  • The University of North Carolina at Chapel Hill

    Chapel Hill, North Carolina, 27599-1350, United States

  • UT Southwestern Medical Center

    Dallas, Texas, 75390-9020, United States

  • University of Florida

    Gainesville, Florida, 32611-5500, United States

  • University of Iowa

    Iowa City, Iowa, 52242, United States

  • University of Kansas Medical Center Research Institute, Inc

    Kansas City, Kansas, 66103-2937, United States

  • University of Pittsburgh

    Pittsburgh, Pennsylvania, 15260-3203, United States

  • University of Utah

    Salt Lake City, Utah, 84112, United States

  • Vanderbilt University Medical Center

    Nashville, Tennessee, 37203, United States

Conditions

Explore the condition pages connected to this study.