Massive study aims to unravel best treatments for neuroendocrine tumors

NCT ID NCT05064150

Ongoing Knowledge-focused Sponsor: University of Iowa Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times

Summary

This study follows over 2,500 people with neuroendocrine tumors (NETs) to understand their symptoms and how treatments are chosen. Participants fill out surveys about quality of life and care experiences over 18 months. Researchers will link this to medical records to find which treatments work best with the least side effects. The goal is to help patients and doctors make better decisions together.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this study could help doctors and patients choose the best treatments for neuroendocrine tumors with fewer side effects.
What could go wrong: This is an observational study, not a treatment trial. It collects data but does not test a new drug or therapy, so it won't directly change care.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

digestive system neuroendocrine neoplasm digestive system neuroendocrine tumor, grade 1/2 lung neuroendocrine neoplasm neuroendocrine carcinoma neuroendocrine neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

GASTROENTEROPANCREATIC NEUROENDOCRINE TUMOR LUNG NEUROENDOCRINE NEOPLASM NEUROENDOCRINE TUMORS NEUROENDOCRINE; CARCINOMA

Contacts and locations

Locations

Allina Health System

Minneapolis, Minnesota, 55407, United States
Mayo Clinic Rochester

Rochester, Minnesota, 55905, United States
Medical College of Wisconsin, Inc

Milwaukee, Wisconsin, 53226, United States
Regents of the University of Michigan

Ann Arbor, Michigan, 48109-1340, United States
The Medical University of South Carolina

Charleston, South Carolina, 29407-4636, United States
The Ohio State University

Columbus, Ohio, 43210, United States
The University of North Carolina at Chapel Hill

Chapel Hill, North Carolina, 27599-1350, United States
UT Southwestern Medical Center

Dallas, Texas, 75390-9020, United States
University of Florida

Gainesville, Florida, 32611-5500, United States
University of Iowa

Iowa City, Iowa, 52242, United States
University of Kansas Medical Center Research Institute, Inc

Kansas City, Kansas, 66103-2937, United States
University of Pittsburgh

Pittsburgh, Pennsylvania, 15260-3203, United States
University of Utah

Salt Lake City, Utah, 84112, United States
Vanderbilt University Medical Center

Nashville, Tennessee, 37203, United States

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