Swiss database launched to track rare lung disease
NCT ID NCT03606200
Summary
This study is creating a national patient registry to collect long-term health information from people in Switzerland diagnosed with Primary Ciliary Dyskinesia (PCD), a rare genetic condition that affects the lungs and sinuses. It aims to track how the disease progresses, what treatments patients receive, and their quality of life over time. The data will be used to better understand PCD and to help plan future research and treatments.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University of Bern
RECRUITINGBern, 3012, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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