Swiss launch national database to track rare lung disease
NCT ID NCT03606200
First seen Dec 11, 2025 · Last updated May 13, 2026 · Updated 22 times
Summary
This study is creating a national registry in Switzerland for people diagnosed with Primary Ciliary Dyskinesia (PCD), a rare lung condition. Researchers will collect information on symptoms, treatments, and test results from up to 800 participants over time. The goal is to better understand the disease and support future research, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University of Bern
RECRUITINGBern, 3012, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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