Do patients understand their home infusion guides? new survey aims to find out
NCT ID NCT05669729
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This survey will ask about 60 people—patients with Gaucher disease, their caregivers, and home infusion nurses—how well they understand and use educational materials for at-home VPRIV infusions. The materials include an infusion diary, a guide, and an emergency plan. The goal is to see if these tools are clear and helpful for safe home treatment.
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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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