Do patients understand their home infusion guides? new survey aims to find out
NCT ID NCT05669729
First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This survey will ask about 60 people—patients with Gaucher disease, their caregivers, and home infusion nurses—how well they understand and use educational materials for at-home VPRIV infusions. The materials include an infusion diary, a guide, and an emergency plan. The goal is to see if these tools are clear and helpful for safe home treatment.
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Conditions
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