New app gives kids with spina bifida a voice in their own care

This study is creating and testing a smartphone app designed to help children and teenagers with spina bifida work with their doctors to set personal goals for managing bladder and bowel incontinence. The app aims to shift the focus from standard medical targets to what matters most to the child and family, improving communication and care. Researchers are working directly with patients, families, and doctors to design the tool and are testing how well it works in real clinic visits.