Extended safety testing for promising epilepsy drug in children

NCT ID NCT03635073

Summary

This study aimed to check the long-term safety of an experimental drug called soticlestat when added to existing seizure medications. It involved 156 children and young adults with severe, hard-to-treat forms of epilepsy, including Dravet and Lennox-Gastaut syndromes. Participants took the drug twice daily and were monitored for side effects and changes in behavior and seizure frequency over an extended period.

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Contacts and locations

Locations

  • Ann and Robert H Lurie Childrens Hospital of Chicago

    Chicago, Illinois, 60611, United States

  • Austin Hospital

    Heidelberg, Victoria, 3084, Australia

  • Austin Hospital

    Heidelberg West, Victoria, 3081, Australia

  • Beijing Children's Hospital,Capital Medical University

    Beijing, 100045, China

  • Beijing Children's Hospital,Capital Medical University

    Beijing, 100069, China

  • Bluegrass Epilepsy Research LLC

    Lexington, Kentucky, 40504, United States

  • Bnai Zion Medical Center

    Haifa, 31048, Israel

  • Boston Children's Hospital

    Boston, Massachusetts, 02115, United States

  • Center for Rare Neurological Diseases

    Norcross, Georgia, 30093, United States

  • Centro Hospitalar Lisboa Central- Hospital Dona Estefania

    Lisbon, 1169-045, Portugal

  • Centro Hospitalar Lisboa Norte, E.P.E. Hospital de Santa Maria

    Lisbon, 1600-035, Portugal

  • Centro Hospitalar Lisboa Norte, E.P.E. Hospital de Santa Maria

    Lisbon, 1649-035, Portugal

  • Centrum Medyczne Plejady

    Krakow, 30-363, Poland

  • Children's Hospital at Saint Peter's University Hospital

    New Brunswick, New Jersey, 08901, United States

  • Children's Hospital of Fudan University

    Shanghai, Shanghai Municipality, 201102, China

  • Clinica Universidad Navarra

    Pamplona, Navarre, 31008, Spain

  • Colorado Children's Hospital

    Aurora, Colorado, 80045-7106, United States

  • Colorado Children's Hospital

    Aurora, Colorado, 80045, United States

  • Columbia University Medical Center - PIN

    New York, New York, 10032, United States

  • Cook Children's Medical Center - Jane and John Justin Neurosciences Center

    Fort Worth, Texas, 76104, United States

  • David Geffen School of Medicine at UCLA

    Los Angeles, California, 900095-1752, United States

  • David Geffen School of Medicine at UCLA

    Los Angeles, California, 90095-8358, United States

  • Edith Wolfson Medical Center

    Holon, 58100, Israel

  • Hospital For Sick Children

    Toronto, Ontario, M5G 1X8, Canada

  • Hospital Ruber Internacional (Grupo Quironsalud)

    Madrid, Madrid, Communidad Delaware, 28034, Spain

  • Hospital Ruber Internacional (Grupo Quironsalud)

    Madrid, 28034, Spain

  • Hospital Universitari i Politecnic La Fe de Valencia

    Valencia, 46026, Spain

  • Hospital Vithas La Salud

    Granada, 18008, Spain

  • Max Benzaquen, M.D., PC

    Chesterfield, Missouri, 63017, United States

  • Mayo Clinic - PIN

    Rochester, Minnesota, 55905, United States

  • Medical University of South Carolina Childrens Hospital - PIN

    Charleston, South Carolina, 29425, United States

  • Medsol Clinical Research Center Inc

    Port Charlotte, Florida, 33952, United States

  • Medsol Clinical Research Center Inc

    Port Charlotte, Florida, 33980, United States

  • Minnesota Epilepsy Group PA

    Saint Paul, Minnesota, 55102, United States

  • Monash Children's Hospital

    Clayton, Victoria, 3168, Australia

  • NYU - Ambulatory Care Center (ACC)

    New York, New York, 10016, United States

  • NZOZ Centrum Neurologii Dzieciecej i Leczenia Padaczki

    Kielce, Świętokrzyskie Voivodeship, 25-316, Poland

  • Nicklaus Children's Hospital

    Miami, Florida, 33155-3009, United States

  • Nicklaus Children's Hospital

    Miami, Florida, 33155, United States

  • Northeast Regional Epilepsy Group

    Hackensack, New Jersey, 07601-1974, United States

  • Pediatric Neurology PA

    Winter Park, Florida, 32789, United States

  • Peking University First Hospital

    Beijing, 100034, China

  • Rare Disease Research, LLC

    Atlanta, Georgia, 30318, United States

  • Rare Disease Research, LLC

    Atlanta, Georgia, 30322, United States

  • Samodzielny Publiczny Dzieciecy Szpital Kliniczny w Warszawie

    Warsaw, 02-091, Poland

  • Schneider Children's Medical Center of Israel - Petah Tikvah - PIN

    Petah Tikva, 49100, Israel

  • Sheba Medical Center - PPDS

    Ramat Gan, 52621, Israel

  • Sheba Medical Center - PPDS

    Ramat Gan, 5265601, Israel

  • Shenzhen Children's Hospital

    Shenzhen, Guangdong, 518026, China

  • Soroka University Medical Centre

    Beersheba, 84101, Israel

  • Szpital Kliniczny im. H.Swiecickiego Uniwersytetu Medycznego im. Karola Marcinkowskiego w Poznaniu

    Poznan, Greater Poland Voivodeship, 60-355, Poland

  • Tel Aviv Sourasky Medical Center PPDS

    Tel Aviv, Tel Aviv, 64239, Israel

  • Tel Aviv Sourasky Medical Center PPDS

    Tel Aviv, 64239, Israel

  • University of South Florida

    Tampa, Florida, 33606, United States

  • Uniwersyteckie Centrum Kliniczne

    Gdansk, Pomeranian Voivodeship, 80-952, Poland

  • Wake Forest Baptist Medical Center - PPDS

    Winston-Salem, North Carolina, 27157, United States

  • Xenosciences Inc

    Phoenix, Arizona, 85004, United States

  • Xiangya Hospital Central South University

    Changsha, 410008, China

  • Xiangya Hospital of Central South University

    Changsha, 410008, China

Conditions

Explore the condition pages connected to this study.