Rare disease survey aims to unlock job barriers for young adults
NCT ID NCT07527624
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study surveys 300 young adults aged 15-25 with rare genetic diseases to understand the difficulties they face in getting education, internships, and stable jobs. Participants fill out a short form about their experiences. The goal is to find what helps or hinders their path to work and training, so better support can be offered.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could identify key barriers and effective tools to help young people with rare genetic disabilities find training and jobs.
What could go wrong
This is an observational survey, not a treatment trial, so it won't directly change health outcomes. Results may not apply to all rare diseases.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Imagine Clinical Research
RECRUITINGParis, Île-de-France Region, 75015, France
Contact Phone: •••-•••-•••• Email: •••••@•••••